A new book, "Medical Mistrust in Appalachia," compiled by Wendy Welch and Beth O'Connor, gathers academic and clinical accounts of why Appalachian patients often distrust healthcare providers, citing studies showing up to 80% express some distrust and over 25% severe distrust. The authors and contributors trace this to systemic and historical factors: healthcare deserts, hospital closures, communication gaps and doctors from different economic backgrounds telling poor patients to simply "eat better."
One chapter author, Wendy Lewis, documented three generations of a Black family in Appalachia who each experienced medical neglect during pregnancy, including a stillbirth, an episiotomy performed with limited anesthesia based on an assumption about pain tolerance, and a case of ignored pre-eclampsia symptoms. National data cited in the book shows roughly a quarter of Americans distrust healthcare professionals generally, with even lower confidence in the system's fairness or transparency.
The book argues the mistrust is not ignorance but a rational response to lived experience, and aims to help providers understand patients' hesitation as earned rather than irrational.
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